You are currently viewing ‘I felt it was serious’: Spots appeared on Laura’s baby girl’s tongue, she was actually suffering from a rare and life-threatening disease

‘I felt it was serious’: Spots appeared on Laura’s baby girl’s tongue, she was actually suffering from a rare and life-threatening disease

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  • Reading time:3 mins read

The child suffered from fatigue and rashes on his chest and the symptoms did not fade over the days. A black patch even developed on Elsie’s tongue. So Laura started to worry: “We called our doctor when she woke up with blood blisters on her tongue. He immediately sent us to the emergency room, that’s when I realized things were getting serious. Quickly we were told about bone marrow and I felt it was serious,” she told the Mirror.

Baby Elsie was seen at Sheffield Children’s Hospital and diagnosed with aplastic anemia with only a bone marrow transplant as the only cure. It is a rare and life-threatening condition: “She needed platelet transfusions twice a week and blood transfusions about every seven to ten days.” Unfortunately, Elsie later developed sepsis: “She was bedridden and unable to even move her head. We feared that she would not tolerate the transplant, or that it would have to be delayed”.


“If you can donate, do it”

The family eventually found a donor and the little one was able to benefit from a bone marrow transplant, a very risky procedure for Elsie: “We almost lost her to sepsis, and after that, the risks of death and the success rate changed drastically, but that was her only option,” Laura said. “Elsie was amazing and always smiling despite the ordeal.”

Laura documented her daughter’s journey on the social network Instagram to inform other parents about this disease. She also raises awareness about organ and stem cell donations: “People like Elsie always need donors and I can’t stress enough that it’s vital that if you can donate, donate the “.